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Connect with NATPARA Patient Ambassadors

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The NATPARA Shire Patient Ambassador Program enables patients to connect directly with real hypoparathyroidism patients to share their experiences through:

Live Events

  • Live meetings in your area will feature healthcare experts and Patient Ambassadors discussing hypoparathyroidism and treatment with NATPARA
  • These gatherings allow patients to receive education from NATPARA Patient Ambassadors 
 in a positive environment

Phone Mentor Program

  • This program enables patients to speak directly with a Patient Ambassador
  • These courageous NATPARA Patient Ambassadors have agreed to share their personal stories and experience with NATPARA with other patients
Ambassador: Cece

Cece

Cece is in her 50s and is a community leader

MEDICAL HISTORY
  • Cece had her thyroid removed due to thyroid cancer
  • She was diagnosed with chronic hypoparathyroidism 6 months after surgery
  • Before starting NATPARA, Cece was taking 3000 mg of oral calcium and 0.5 to 1 mcg of active vitamin D per day
TREATMENT COURSE WITH NATPARA
  • Daily dose of NATPARA was adjusted to 75 mcg over the course of several months
  • Dose of oral calcium was gradually reduced to 1500 mg per day along with 0.25 mcg of active vitamin D

“I still need to manage my hypoparathyroidism, and I’m thankful to have NATPARA to help me with that. I have been able to decrease my calcium and vitamin D over time.”

“I still need to manage my hypoparathyroidism, and I’m thankful to have NATPARA to help me with that. I have been able to decrease my calcium and vitamin D over time.”

NATPARA may cause serious side effects, including:
High blood calcium (hypercalcemia)

  • NATPARA can cause some people to have a higher blood calcium level than normal.
    • Your doctor should check your blood calcium before you start and during your treatment with NATPARA.
    • Tell your doctor if you have nausea, vomiting, constipation, low energy, or muscle weakness. These may be signs that you have too much calcium in your blood.
Ambassador: Melissa

Melissa

Melissa is in her 50s, a parent, and a microbiologist

MEDICAL HISTORY
  • Melissa had her thyroid removed due to a multinodular goiter
  • She was diagnosed with chronic hypoparathyroidism about 1 year after surgery
  • Before starting NATPARA, Melissa was taking 3600 mg of oral calcium and 2 mcg of active vitamin D daily
TREATMENT COURSE WITH NATPARA
  • She and her endocrinologist researched treatment options and 
 she was prescribed NATPARA
  • Daily dose of NATPARA was adjusted to 75 mcg over the course of several months
  • Dose of oral calcium was gradually reduced to 1800 mg per day along with 0.75 mcg of active vitamin D

“My endo and I both reached out to the insurance company, and to OnePath, Shire’s product support service, about co-pay assistance. Everyone I talked to was great and very supportive.”

“I reached out to the insurance company, and to OnePath, Shire's product support service, for information about co-pay assistance. Everyone I talked to was great and very supportive.”

NATPARA helped reduce the need for oral calcium supplements and reduced or removed the need for active vitamin D

In a 24-week clinical study in 124 adults with hypoparathyroidism:

  • To prove the efficacy of NATPARA, by the end of the study patients had to have their:
    • Dose of active vitamin D reduced by at least 50%
    • Dose of calcium reduced by at least 50%
    • Blood calcium level in a certain target range (between 7.5 mg/dL and 10.6 mg/dL)
55 Percent

of patients who received NATPARA reduced their active vitamin D and oral calcium use by at least half while maintaining calcium levels in the blood within a target range compared with 3% in the placebo groupa,b

42 Percent

of patients who received NATPARA were able to stop all use of active vitamin D, and to reduce their oral calcium to no more than 500 mg per day compared with 3% in the placebo groupa,b

69 Percent

of patients who received NATPARA reduced their oral calcium use by at least half compared with 8% in the placebo groupa,b

aAt the end of the clinical study, there were no differences in the percentage of patients with serum calcium levels between 7.5 mg/dL and 10.6 mg/dL in the NATPARA (86.9%) and placebo (87.5%) groups.

bOf the 124 adult patients, 84 were taking NATPARA and 40 were taking placebo.

Ambassador: Ryan

Ryan

Ryan is in his 30s, a parent, and a public speaker

MEDICAL HISTORY
  • Ryan had emergency surgery to remove his thyroid due to Graves’ disease
  • He was diagnosed with chronic hypoparathyroidism 6 months after surgery
  • Before starting NATPARA, Ryan was taking 5000 mg of oral calcium and 0.75 mcg of active vitamin D daily
TREATMENT COURSE WITH NATPARA
  • Ryan found out about NATPARA. Once it was approved, his doctor and he decided to try NATPARA to reduce his daily doses of calcium and vitamin D
  • Daily dose of NATPARA was adjusted to 75 mcg over the course of 6 months
  • Dose of oral calcium was gradually reduced to 500 to 1000 mg per day with no active vitamin D

“With my physician and family by my side, we decided that NATPARA was the right treatment option for me.”

“With my physician and family by my side, we decided that NATPARA was the right treatment option for me.”

NATPARA may cause serious side effects, including:
Low blood calcium (hypocalcemia)

  • People who stop using or miss a dose of NATPARA may have an increased risk of severe low blood calcium levels
  • Tell your doctor if you have tingling of your lips, tongue, fingers and feet, twitching of face muscles, cramping of feet and hands, seizures, depression, or have problems thinking or remembering
  • Tell your doctor right away if you have any of these signs and symptoms of high or low blood calcium levels
Ambassador: Denise

Denise

Denise is in her 50s and married. She is a licensed practical nurse

MEDICAL HISTORY
  • Denise was diagnosed with Graves’ disease at age 13 and had her thyroid removed at 16, and was later diagnosed with chronic hypoparathyroidism
  • Before starting NATPARA, Denise was taking 5000 mg of oral calcium and 0.5 mcg of active vitamin D daily
TREATMENT COURSE WITH NATPARA
  • She first received NATPARA as part of a clinical trial and has been taking NATPARA ever since to help control her low blood calcium levels
  • Daily dose of NATPARA was adjusted to 100 mcg over the course of several months
  • Dose of oral calcium was gradually reduced to 500 mg per day with no active vitamin D

“My Case Manager at OnePath, Shire's product support program, helped me arrange everything with my doctor, insurance company and the specialty pharmacy.”

“My Case Manager at OnePath, Shire's product support program, helped me arrange everything with my doctor, insurance company and the specialty pharmacy.”

NATPARA® is a registered trademark of Shire-NPS Pharmaceuticals, Inc.

OnePath® is a registered trademark of Shire or its affiliates.

Q-Cliq is a trademark of Shire-NPS Pharmaceuticals, Inc.